Kelly and Gary Munden are urging people to support EACH after the invaluable support they received following the death of their daughter, Annabel.

A Terrington St Clement mum is calling on the public to support a cause close to her heart.

Kelly and Gary Munden’s daughter Annabel died aged five from a condition called Cockayne Syndrome or CS – a very rare and life-threatening condition passed on through a faulty gene from both parents.

She had hearing loss in both ears, cataracts in both eyes, recurring chest infections and needed regular antibiotics, steroids and inhalers.

Following the death of their daughter last year, the couple spent time at The Nook – East Anglia’s Children’s Hospices (EACH), near Norwich, before returning home.

And now Mrs Munden is urging people to support the hospices through the UK’s Big Give Christmas Challenge.

The online matched fundraising campaign was launched on Tuesday and will run until Tuesday, December 7. During this time, donations will be doubled.

The money raised for EACH will go to support the charity’s bereavement services.

Mrs Munden is urging people to support the Big Give saying the help they had received from EACH was “invaluable”.

“Without having counselling, I think we probably would have sat in our house and locked the world away. 

“We’d never have done anything again so were thankful to have the help and support of (counsellor) Amy. She was invaluable,” she said.

Annabel was in and out of hospital throughout her life, until last June when she made her final trip to the Queen Elizabeth Hospital in King’s Lynn. 

There are only two to three people per million worldwide with CS and Annabel had the most severe.

The youngster had a number of complex care needs. She was tube fed and suffered from severe reflux, for which she needed medication three times a day.

Mrs Munden said Christmas was a particularly poignant and challenging time but the couple is looking forward to lighting a candle at EACH’s memory day at The Nook.

“Annabel loved the tree, the pretty lights and playing with tinsel, although she found it very overwhelming.

“Last year was our first without her so we made sure we did something special. It was her favourite time of year so we put our tree up early.

“Then, at 4am on Christmas morning, we went and saw the sunrise at Wells-next-the-Sea with our Annabel bear that holds Annabel’s ashes.

“It was so magical and as soon as we set foot outside, the snow fell. It was perfect and we thought it was Annabel’s way of telling us she was with us. 

“We sat in the car, had a few tears and spoke about Christmases past. It was always this time of year that we questioned whether this could be our last together.

“Annabel suffered with chest infections during the winter so we always made sure we never regretted anything over Christmas.

“It’s a time of year we dread but we make memories for Annabel, instead of with Annabel, to make her proud.”

Show your support at the Big Give website and make your donation to EACH.